Tuesday, November 30, 2010

Update and photos

Thankfully we were able to get the car in to be fixed today and it was a little more expensive than we planned, but at least we didn’t need to have it towed in.  We also had the windshield wiper arm temporarily fixed until the snow starts at least (and it was a free fix).    Dad has an interview tomorrow and has hope that next Friday may not be his last day at his current job, but he is working very hard to find something that will be more enjoyable and secure.   Here are a few photos from this season!





Friday, November 26, 2010

Giving Thanks—OHHH YEAHHHH

So this year we are looking forward into a future that we are not certain of and many people may see the negative— a day before thanksgiving roof leak and finding that we need a new roof much sooner than our home inspection stated, a new alternator scheduled for our main car next Tuesday (hopefully it holds out that long), new windshield wiper gears for the other car, oh and yeah- the impending joblessness.  This year appears to be a time of darkness, but this is the most exciting year that we have ever had as we are a complete family this year for the first time ever.  This time last year, I was recovering from a very bad long lasting reaction to a medicine that he should have never been given, and Mom was just starting to realize that she was unable to tolerate any disease modifying medicines.  We were still actively seeking a way to pay for a private adoption and had just figured out a way to do it in two years.  We still prayed that last year would be the last one that we would have as a family of two plus the dog, but we couldn’t even conceive that we would have Hope in our family.  So despite the outward appearance that we are struggling, we couldn’t possibly be more grateful this year for the blessings that we have had come into our life, as well as for those people such as Hope’s sister’s adoptive family who cared for her for 8 months while God moved us into a position to have her join us, her caseworker, her therapy team, and of course her birth family who remind us that things could always be worse.
 We are so incredibly blessed to be where we are in our life together.  I especially am grateful this year for my incredible wife who has been through the ringer this year to be able to get her in position to be a full time mom.  She and I have always been open and actively talking with each other building our relationship, and this year has been no exception. She has had an amazing ability to go from fighting huge cognitive issues caused by her MS which has stopped her from the job she loved to becoming a stay at home mom to the daughter we love in literally less than four days.  She still shows that she has the same issues but the miracle behind this is that she uses a different set of skills to take care of Hope.  Outside of that, she has still been amazing at facing her struggles and working to overcome them.  When life gives her a challenge, I am always awestruck by her ability to navigate it and make the best of the situation.  She has gone from getting legislation passed and keeping MS meds available for Indiana Medicaid patients to working to ensure that Hope has everything she needs to excel and amaze her therapists.   There are times when I know that she gets frustrated that she can’t sit down and work filling out forms that she use to help clients with, but when I come home and hear my daughter pronounce the word “DAD” completely, I can help her fill out a lot of forms for that type of reward!  
So as we face what is an uncertain year, we look back and realize that every year is one of great uncertainty, so we look forward to next year with gratitude for the blessings that have brought us where we are today and faith that we will be looking back next year awestruck with where we have been.  Our hope and prayer for everyone who is reading these words that you are as blessed as we have been and that you can continue to grow in your personal journey with God.  God Bless you this Thanksgiving weekend.

New update

Greetings all….  Sorry to have been silent for so long.  We’re on God’s wild and crazy ride!   Mom continues to deal with working through her disability as we both work to learn what her limitations are and try to let each other know when we’re getting close to them.  Hope’s visits with her birth mom have been stopped, and she has been doing very well.   She is staring to become more comfortable in her environment and is demonstrating “extreme comfort levels with her environment” by walking around frequently with her eyes closed or blankets over her head.  Her bonds have been established stronger than what we thought was even possible.  She continues to improve with her comfort level with strangers and strange environments as long as one of us is with her.   There are certainly times when she only wants her mommy and mom is more than willing to cooperate.  It has been amazing to watch her grow in her comfort with us and in her abilities.  What a blessing she has been and what a blessing Mom has been to her.  In the time that she has been with us, she has gone from babbling very rarely to constantly babbling and now even talking.  Tonight she said her first complete phrase with all of its parts “All Done” she said repeatedly.  When it comes to her walking and stability, she is now very confident in all of her movement and is fearless when it comes to running with and without her braces—only new shoes throw her off.  We don’t think  that she will need them for much longer.   She has done so well in the short time that she has been with us.  It is amazing how attached she is attached to mom and I – but mostly mom.   She is an amazing blessing in our home and we remain very prayerful that the court will see this and decide that our home is the best place for Hope.